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1. What exactly is a
marrow transplant?
Simply, it
is the replacement of diseased marrow with marrow from a healthy
donor, infused into a patient’s veins through an IV, just like a
blood transfusion. Within two to three weeks, the transplanted
bone marrow begins to produce normal blood cells in the patient.
2:
Is marrow transplantation a new technique?
Not really.
Twelve years ago, marrow transplants were done only as a
patient’s last hope. Today, thousands are done every year at
approved medical centers worldwide.
3.
Which diseases can be treated with marrow transplantation?
Various
types of leukemia, aplastic anemia, severe combined immune
deficiency syndrome, sickle cell anemia, and radiation poisoning
can be treated by marrow transplantation.
4.
What are the actual chances of finding a suitable marrow donor?
The odds
are 1 in 20,000 of identifying an unrelated compatible marrow
donor… much higher, however, for patients of minority heritage.
YOU could be that special life-giving person!
5.
Are donors matched only against American patients?
No, the
patient could be anywhere in the world. Many American patients
have found donors from international donor sources.
6.
Who can become a marrow donor?
You must be
between 18 and 55 years old; have no history of hepatitis, heart
disease, cancer or AIDS; possess a positive attitude and pride
in wanting to become a donor, and sign a standard consent form
allowing the Registry to include your HLA tissue type in its
confidential, computerized flies for future matching.
7.
And it only takes a simple blood test to get started?
Once the
consent form is signed, YES. It’s that simple. The remaining
sample is frozen to be used for second level testing if you
should match at the first level. Of course, your consent to do
so would be obtained.
8.
What does the initial HLA testing cost?
It costs
the Registry $60 to test and enroll a new donor. If a donor
cares to donate all or part of that cost, the donation is
acknowledged for tax purposes as allowed under law.
9.
Where is the blood drawn?
The blood
is drawn at a laboratory in our local community or by your
personal physician. Complete instructions are included with the
kit.
10.
What happens if I am a match?
If you are
found to be a possible first level match with a patient needing
transplantation, we will contact you immediately and give you
the option of proceeding to a second and third blood test to
insure final HLA compatibility with the patient. (Both tests,
authorized by the patient’s physician, are paid for by the
patient or his/her medical insurance plan.) Then, if the match
is confirmed, the transplant can scheduled, but only with your
legal consent, given after in-depth counseling and thorough
physical examination.
11. Okay, now tell me how my marrow is extracted?
First, you
are given light general anesthesia so that you feel nothing
during the procedure. Second, only 2% to 3% of your marrow is
collected from your hip area through special sterile needles.
You may go home the same day or the following morning.
12.
Does it hurt?
You feel
nothing during the procedure, but may experience some residual
soreness in the lower back area for a few days.
13. Are there any risks?
Other than
the remote chance of a reaction to anesthesia, or an infection,
the risks are minimal. This will be explained to you in detail.
14.
What happens to the patient?
If the
transplant is successful, the new marrow begins to induce
normal, healthy blood cells within two to three weeks. The
patient has received the chance-of-a-lifetime.
15.
Who pays the total cost to donate my marrow?
Not you -
the patient or his/her medical insurance does.
16.
Can I withdraw as a donor at any time if I want to?
Up until
the time you provide us with your final, legal consent to
proceed with the transplant — YES! But we hope that you would
not want to change your mind, as too much is at stake for the
patient needing your help.
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